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Showing posts from June, 2016

Letter to Shiloh in 2013

Dear Shiloh, In 2 short months your world will be completely turned upside down.  You may not know it now, but that sweet little girl inside your belly has a hole in the bottom of her back.  Don't worry, she's going to be fine and you will make it through the other side a much stronger person.  You're going to be given the option to have a surgery while that sweet girl is still in your belly.  Take it!  You're going to be given a lot of paperwork and a book that explains what Spina Bifida is and all that comes with the diagnosis. Throw it all away!  None of that literature is going to matter when you see that sweet little girl for the first time.  You're not going to thumb through the pages when she bears weight for the first time.  No amount of literature is going to prepare you for that first time she needs a surgery when she's not even 2.  Nothing in those pages will comfort you when you are faced with the reality of her finally needing a shunt.  The time wi