Railroad Wife, Railroad Life

Monday morning Kennedy had a follow-up MRI.  She wasn't as happy this time around as she was the last time.  Afterwards we were able to bump her renal ultrasound appointment up.  She made the ultrasound tech laugh because she kept placing her hands behind her head.  I'm beginning to thing this is Kennedy's security pose.  She sleeps like that all of the time! We met with Dr. Stevenson at 10AM to discuss the results from the MRI.  Unfortunately Kennedy's brain ventricles went from 46MM to 48MM since her MRI in March.  She is beginning to develop Hydrocephalus, which goes hand in hand with Spina Bifida.  Basically her brain is making too much cerebrospinal fluid and could potentially create unwanted pressure on her brain.  While Kennedy now qualifies for a shunt placement, Dr. Stevenson would like to wait 2 more months to give her ventricles a chance to stabilize.  She will have another MRI at the end of July.  If her ventricles hav...

Last week we went on our first vacation since Kennedy was born.  We started out going to Jonathon's parents house in the beginning of the week.  Jonathon finally finished Savannah's pedal car, which he's been working on for over a year.  She really likes it, although her feet are about 6 inches away from the closest setting.  She likes to do the Flintstones thing with her feet though.  While we were there we also were able to celebrate the pending arrival of our newest Niece, Madilynn.  She is due in May, but I'm not sure she's going to wait that long. The last half of the week we went down to Pigeon Forge and Gatlinburg for the semi-annual Rod Run.  Jonathon was really hoping to find his first classic car, but was unsuccessful.  We rented a really nice cabin and had Jonathon's parents, Granny, and Cousin with us.  The first night there we went to Dolly Parton's Dixie Stampede.  Not only was the food amazing, but the show was pretty aw...