Kennedy's 1st Spina Bifida Clinic
Yesterday morning we met with the Pulmonary doctor who read Kennedy's sleep study. He said we could start taking Kennedy off of the oxygen during the day, but he would feel more comfortable doing another sleep study at 6 months old before taking her off completely.
After the Pulmonary appointment Kennedy had a renal ultrasound. The ultrasound tech was so nice. She put a movie on for Savannah to watch while the ultrasound was going on. Kennedy was a trooper and was asleep for the majority of the time.
An hour before we had to run to the Clinic we met up with the Mom of one of Kennedy's roommates. We had such a great time catching up with her. She loved seeing Kennedy and even took a picture to show the nurses who took care of her.
Later in the day we had the Spina Bifida Clinic. She is currently 10 1/2 pounds and 21 inches long. The head of the Clinic came in to examine Kennedy first. She was very impressed with her movement. We both agreed that for now Kennedy doesn't need any PT at home.
We met with the dietitian who told us we could start using regular formula to fortify my breast milk and we no longer have to add the protein. She was very impressed with Kennedy's weight gain but doesn't want to do anything to slow it down. We are very happy to get her off of the NeoSure.
One of the last doctors we saw in Clinic was the Urologist. He explained that he'd like to look into cathing Kennedy when we come back for her 6 month appointment. Right now she is emptying her bladder and doesn't have any reflux going into her kidney's. However, he believes that because majority of Spina Bifida babies have to be cathed that she will be no different. This is something Jonathon and I disagree with completely. We don't want to cross this bridge until it becomes absolutely necessary. The Urologist would like to perform a urodyamics test on her when she comes back. I am really praying that the test will show him that she doesn't need to be cathed and we can hold off the discussion for awhile.
Overall Kennedy had a great day. She was a trooper given all of the poking and prodding she endured. I love how resilient she is, given all she's been through so far in her short little life. God gave us such a great gift and we are so proud to be her parents.
After the Pulmonary appointment Kennedy had a renal ultrasound. The ultrasound tech was so nice. She put a movie on for Savannah to watch while the ultrasound was going on. Kennedy was a trooper and was asleep for the majority of the time.
An hour before we had to run to the Clinic we met up with the Mom of one of Kennedy's roommates. We had such a great time catching up with her. She loved seeing Kennedy and even took a picture to show the nurses who took care of her.
Later in the day we had the Spina Bifida Clinic. She is currently 10 1/2 pounds and 21 inches long. The head of the Clinic came in to examine Kennedy first. She was very impressed with her movement. We both agreed that for now Kennedy doesn't need any PT at home.
We met with the dietitian who told us we could start using regular formula to fortify my breast milk and we no longer have to add the protein. She was very impressed with Kennedy's weight gain but doesn't want to do anything to slow it down. We are very happy to get her off of the NeoSure.
One of the last doctors we saw in Clinic was the Urologist. He explained that he'd like to look into cathing Kennedy when we come back for her 6 month appointment. Right now she is emptying her bladder and doesn't have any reflux going into her kidney's. However, he believes that because majority of Spina Bifida babies have to be cathed that she will be no different. This is something Jonathon and I disagree with completely. We don't want to cross this bridge until it becomes absolutely necessary. The Urologist would like to perform a urodyamics test on her when she comes back. I am really praying that the test will show him that she doesn't need to be cathed and we can hold off the discussion for awhile.
Overall Kennedy had a great day. She was a trooper given all of the poking and prodding she endured. I love how resilient she is, given all she's been through so far in her short little life. God gave us such a great gift and we are so proud to be her parents.
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